Welcome to my space, my name is Luis. I have a rare illness known as Nascimento x-linked intellectual disability.

Areas to explore

Luis' Space exploring the Rare illness and Disability world.

Interactive Space

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Our interactive space is a great way for young ones to learn more about disabilities in a fun way.

Antonio in front a mountain in Snowdonia

Rare illness posts

3 illnesses that only or mainly affect females

In this article we will explore three that only or mainly affect women, Rett Syndrome, Turner syndrome and Aicardi syndrome.

Roberto Castillo

Apr 18

A patient lying on a hospital bed made out of pill boxes.

Stories and poems shared to amplify rare disease day 2025 "More than you can imagine".

It was a great platform for expressing to the wider audience just what life with a rare disease is can be like, from the hospital visits....

Roberto Castillo

Mar 24

International Rare Disease day February 28th 2025

It is a day where many people and organisations worldwide creatively help to raise awareness sharing in the effort of removing barriers...

Roberto Castillo

Feb 27

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Shared stories

Marcus Hoenig sitting in his chair outside.

Against the odds: Startup life as a Disabled Entrepreneur

Motor neurone disease (MND) is a rare condition that progressively damages parts of the nervous system. This leads to muscle weakness, often

Roberto Castillo

Dec 18, 2024

Understanding Aphasia with Tom

Aphasia is the medical term for full loss of language, here Tom helps us to understand more about living with it.

Roberto Castillo

Oct 1, 2024

A ladies' pair of hands resting on her lap with two people listening in the background

Share Your StoryNow.

Help Others.

Increase Awareness.

Send parents and family space

Megaphone at the top of a speech bubble, with TOP 5 written below

Top 5 things to prioritise as a SEND parent

If you had to prioritise a top 5 list of being a SEND parent what would it look like? Here is mine based on experience, experience, experience and of course talking with others in a similar position to mine.

Roberto Castillo

May 8

Luis from a carer's perspective

Working with Luis has been both a rewarding and challenging experience. He is an incredibly happy child, always smiling and laughing.

Roberto Castillo

Mar 7

Growing stronger, faster and more challenging - In his own world

Luis wants to move around more or pulls away more regularly, it feels like he is always trying to escape, is it a game or does he have more

Roberto Castillo

Nov 27, 2024

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School space

Discussing Disability with Children, what can we do?

At some time in their lives they will either see someone in the road, meet someone at school or have a family member who has a disability...

Roberto Castillo

Oct 22, 2024

"What Makes Kelbourne Park School a Special Environment?"

Kelbourne Park is a SEN school based in Glasgow, run by some amazing people.

Roberto Castillo

Jul 1, 2024

General posts

Small girl in white t-shirt with her hand on her chin wondering

What are you talking about, will your group build you up?

With life already challenging, being a carer or having a disability yourself adds additional challenges. So what are the voices around you doing helping you or keeping you down? What are you talking about?

Roberto Castillo

May 23