Meet Luis

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I have irregular sleep and can be up most of the night
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I use Melatonin to help me get back to sleep
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I wake up with a smile and am happy
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I walk wobbly and generally walk short distances as my balance is not perfect and I fall over
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I use my pushchair or wheelchair for longer distances
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I am unable to communicate with words and use sounds instead, pointing to different things
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I can get frustrated when I am not able to say what I want and everyone is trying to work it out
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I have to take two different medicines in the morning and in the afternoon to reduce my seizures
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I must travel with Buccolam in case my seizure lasts more than 5 minutes to prevent further issues
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I enjoy watching a series called Duck Tv for kids over and over
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I enjoy eating, fries, most rice dishes and snacks
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I would like to play with my brother and sister more and do the things they do
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I like tickles and playing you can't catch me
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I like throwing imaginary objects and laughing at it
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I like hugging my family and friends
I am Luis, who lives at home with my parents, older sister and younger brother. I love to attend my school that helps me, as I have been diagnosed with a rare illness called Nascimento X linked disease. This means that I have a few different factors to contend with daily:
Nascimento x-linked intellectual disability
Luis' Events
Luis has had an eventful childhood so far from seizures to surgeries. He went to different therapies and visited many specialists.
Here are some of the events that have happened so far, just to give a background on the effects of his rare illness.
Videos
Luis' Journey
Luis' Journey


Introduction to Luis' Space
