If you had to prioritise a top 5 list of being a SEND parent what would it look like? Here is mine based on experience, experience, experience and of course talking with others in a similar position to mine.

In this article we will explore three that only or mainly affect women, Rett Syndrome, Turner syndrome and Aicardi syndrome.

It was a great platform for expressing to the wider audience just what life with a rare disease is can be like, from the hospital visits....